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Hyperresilient provides clear, research-informed education and practical tools for people managing hEDS, HSD, POTS, MCAS, ADHD, and autism.

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Our educational resources focus on hypermobile Ehlers-Danlos syndrome (hEDS), hypermobility spectrum disorder (HSD), postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and related health topics. We also share educational content on ADHD and autism.

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Clinical features and comorbidities associated with hypermobile Ehlers-Danlos syndrome (hEDS) can involve multiple body systems. This list reflects commonly reported clinical findings and associated conditions described in research and clinical practice ❤️‍🩹

This list is not diagnostic and is not all-inclusive.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with a knowledgeable healthcare provider.

Sources are listed in the comments.

#hEDS #EDS #HSD #Hyperresilient #KeepTheFaith

13 Things People With hypermobile Ehlers-Danlos syndrome (hEDS) Learn Before Diagnosis ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

#hEDS #EDS #HSD #ChronicIllnessAwareness #InvisibleIllness #Hyperresilient

The caretaker side of chronic illness is rarely seen, but it is felt in every moment ❤️‍🩹 To every spouse, partner, parent, and friend who stands in this role: what you do is not invisible. It is endurance, strength, and adaptability in its purest form.

You are the definition of Hyperresilient ❤️‍🩹

If someone has stood beside you through illness, share this with them today.

#ChronicIllnessAwareness #InvisibleIllness #Caregivers #KeepTheFaith #Hyperresilient

Reasons why hypermobile Ehlers-Danlos syndrome (hEDS) is hard to diagnose ❤️‍🩹

Sources:
The Ehlers-Danlos Society (2025). GP Toolkit for EDS and HSD. gptoolkit.ehlers-danlos.org
Petrucci-Nelson T et al. (2025). Complex Genetics and Regulatory Drivers of hEDS. medRxiv.
Daylor V et al. (2025). Defining the Clinical Complexity of hEDS and HSD. medRxiv.
University of Adelaide & SAHMRI (2025). Autonomic and Cerebral Blood Flow Studies in POTS and hEDS.
Malfait F et al. (2017). The 2017 International Classification of the Ehlers-Danlos Syndromes. Am J Med Genet C.
Eccles J.A. et al. (2024). Neural links between joint hypermobility and anxiety. Br J Psychiatry.

Medical Advice Disclaimer:
This information is educational and is not intended to be a substitute for personalized medical guidance. Always consult with a qualified healthcare professional.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

#hEDS #HSD #ChronicIllnessAwareness #InvisibleIllness #Hyperresilient

A large U.S. study using electronic health records found that hypermobile Ehlers-Danlos syndrome (hEDS) appears more common than previously estimated and is associated with higher rates of Long COVID and related comorbidities ❤️‍🩹

While COVID-19 infection rates were similar to controls, people with hEDS showed increased odds of Long COVID, overlapping conditions such as MCAS, POTS, and ME/CFS, and post-viral specialty care. The findings suggest viral immune responses may worsen or unmask underlying hEDS symptoms and highlight the need for multidisciplinary care and additional research.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

Source:
Understanding Comorbidities in Hypermobile Ehlers-Danlos Syndrome: Could a Viral Infection Lead to a Diagnosis? Megan L. Pearson, Bryan J. Laraway, Ellen R. Elias, Ganna Bilousova, Melissa A. Haendel, National Clinical Cohort Collaborative (N3C) Consortium. medRxiv 2025.10.22.25338573; doi:https://doi.org/10.1101/2025.10.22.25338573

#hEDS #HSD #EDS #POTS #MCAS #MEcfs #LongCOVID #ChronicIllnessAwareness #InvisibleIllness #Hyperresilient #KeepTheFaith

Considerations for care with hypermobile Ehlers-Danlos syndrome (hEDS) ❤️‍🩹

hEDS can influence how the body responds to medical care, procedures, medications, and physical stress. Understanding these factors can help improve safety and comfort during appointments, treatments, and daily activities.

Common care considerations may include tissue fragility, joint instability, anesthesia response, autonomic and circulatory factors, medication sensitivities, pain management approaches, physical therapy considerations, positioning, and pregnancy-related care.

This list is not all-inclusive. Individual presentations and care needs vary.

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with a qualified healthcare professional.

Sources:
The Ehlers-Danlos Society (2025). GP Toolkit for EDS and HSD. gptoolkit.ehlers-danlos.org
Petrucci-Nelson T et al. (2025). Complex Genetics and Regulatory Drivers of hEDS. medRxiv.
Daylor V et al. (2025). Defining the Clinical Complexity of hEDS and HSD. medRxiv.
University of Adelaide & SAHMRI (2025). Autonomic and Cerebral Blood Flow Studies in POTS and hEDS.
Malfait F et al. (2017). The 2017 International Classification of the Ehlers-Danlos Syndromes. Am J Med Genet C.
Eccles J.A. et al. (2024). Neural links between joint hypermobility and anxiety. Br J Psychiatry.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

#hEDS #HSD #MCAS #ChronicIllnessAwareness #InvisibleIllness #Hyperresilient #KeepTheFaith

How to Explain Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) based on the latest research ❤️‍🩹 This is Part Two.

hEDS and HSD can co-occur with other conditions that affect multiple systems, including autonomic, immune, neurological, gastrointestinal, and pelvic regulation. This overlap can help explain why symptoms can feel broad, why they can change over time, and why it can take longer to connect the dots across specialties ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, and related multisystem conditions ❤️‍🩹

Sources:
The Ehlers-Danlos Society (2025). GP Toolkit for EDS and HSD. gptoolkit.ehlers-danlos.org
Petrucci-Nelson T et al. (2025). Complex Genetics and Regulatory Drivers of hEDS. medRxiv.
Daylor V et al. (2025). Defining the Clinical Complexity of hEDS and HSD. medRxiv.
University of Adelaide & SAHMRI (2025). Autonomic and Cerebral Blood Flow Studies in POTS and hEDS.
Malfait F et al. (2017). The 2017 International Classification of the Ehlers-Danlos Syndromes. Am J Med Genet C.
Eccles J.A. et al. (2024). Neural links between joint hypermobility and anxiety. Br J Psychiatry.

Medical Advice Disclaimer:
This information is educational and is not intended to be a substitute for personalized medical guidance. Always consult with a qualified healthcare professional.

#hEDS #HSD #EDS #ChronicIllnessAwareness #InvisibleIllness #KeepTheFaith #Hyperresilient

Happy (almost!) New Year, Hyperresilient community! ❤️‍🩹

What a year it’s been. No matter how you’re entering 2026, you are not alone, and you deeply matter ❤️‍🩹

As you step into this new year, remind yourself it’s important to: • Rest without guilt • Pace when you need to • Adjust the plan • Protect your energy • Prioritize strengthening your body and mind • Advocate clearly • Push for answers • Keep asking questions

And when it feels almost impossible, remember this: even small progress still counts ❤️‍🩹

So keep going. Keep the Faith. And remember: you are Hyperresilient.

I’m going to do the same as I continue to pursue and share education, awareness, and better understanding. I’m so grateful for this community and the gift of knowing we’re in this together. None of us are alone ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

#hEDS #HSD #POTS #MCAS #ChronicIllnessAwareness #InvisibleIllness #ADHD #Autism #KeepTheFaith #Hyperresilient

How to Explain Hypermobile Ehlers-Danlos Syndrome (hEDS) based on the latest research ❤️‍🩹

Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) are often underdiagnosed. Both affect how the body stabilizes, regulates, and repairs itself, influencing multiple systems including the autonomic, immune, gastrointestinal, and neurological. Understanding hEDS means recognizing how interconnected the body is and how much unseen regulation it takes to function day to day ❤️‍🩹

This is Part One. More to come.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, and related multisystem conditions ❤️‍🩹

Sources:
The Ehlers-Danlos Society (2025). GP Toolkit for EDS and HSD. gptoolkit.ehlers-danlos.org
Petrucci-Nelson T et al. (2025). Complex Genetics and Regulatory Drivers of hEDS. medRxiv.
Daylor V et al. (2025). Defining the Clinical Complexity of hEDS and HSD. medRxiv.
University of Adelaide & SAHMRI (2025). Autonomic and Cerebral Blood Flow Studies in POTS and hEDS.
Malfait F et al. (2017). The 2017 International Classification of the Ehlers-Danlos Syndromes. Am J Med Genet C.
Eccles J.A. et al. (2024). Neural links between joint hypermobility and anxiety. Br J Psychiatry.

Medical Advice Disclaimer:
This information is educational and is not intended to be a substitute for personalized medical guidance. Always consult with a qualified healthcare professional.

#hEDS #HSD #EDS #ChronicIllnessAwareness #InvisibleIllness #KeepTheFaith #Hyperresilient

Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD), Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), Attention-Deficit/Hyperactivity Disorder (ADHD), and autism are increasingly being discussed together in research ❤️‍🩹

Studies are reporting associations and exploring shared mechanisms across connective tissue, immune, and autonomic systems that may influence both neurodevelopmental and physical health patterns.

Understanding these intersections can help explain why some people with hypermobility experience challenges beyond joints, and why recognizing both physical and nervous system factors can be helpful ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult a qualified healthcare professional.

#hEDS #HSD #POTS #MCAS #ADHD #Autism #KeepTheFaith #Hyperresilient #HyperresilientLife

Sources:
Cederlöf, M., Larsson, H., Lichtenstein, P., Almqvist, C., Serlachius, E., & Ludvigsson, J. F. (2016). Nationwide population-based cohort study of psychiatric disorders in individuals with Ehlers-Danlos syndrome or hypermobility syndrome and their siblings. BMC Psychiatry, 16, 207.
Casanova, E. L., Baeza-Velasco, C., Buchanan, C. B., & Casanova, M. F. (2020). The relationship between autism and Ehlers-Danlos syndromes/hypermobility spectrum disorders. Journal of Personalized Medicine, 10(4), 260.
Csecs, J. L. L., Iodice, V., Rae, C. L., Brooke, A., Simmons, R., Quadt, L., Savage, G. K., Dowell, N. G., Prowse, F., Themelis, K., Mathias, C. J., Critchley, H. D., & Eccles, J. A. (2022). Joint hypermobility links neurodivergence to dysautonomia and pain. Frontiers in Psychiatry, 12, 786916.
Baeza-Velasco, C., Vergne, J., Poli, M., Kalisch, L., & Calati, R. (2025). Autism in the context of joint hypermobility, hypermobility spectrum disorders, and Ehlers–Danlos syndromes: A systematic review and prevalence meta-analyses. Autism, 29(8), 1939–1958.

Christmas is a reminder that light still shows up, even in hard seasons. Wishing you peace today and hope for what’s ahead. Keep the faith ❤️‍🩹

#KeepTheFaith #Hyperresilient #ChristmasEve #Christmas #Hope

When autism and ADHD overlap, traits can hide, cancel, or even amplify each other, making both harder to recognize ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

#Autism #ADHD #AuDHD #KeepTheFaith #Hyperresilient

9 facts about Postural Orthostatic Tachycardia Syndrome (POTS). POTS can look like a random mix of symptoms, but many of them connect back to one core issue: the autonomic nervous system struggling to regulate heart rate and circulation when upright ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with a qualified healthcare professional.

#POTS #Dysautonomia #OrthostaticIntolerance #ChronicIllnessAwareness #InvisibleIllness #Hyperresilient #KeepTheFaith

Sources:
Grubb, B. P. (2008). Postural tachycardia syndrome. Circulation, 117(21), 2814–2817. doi:10.1161/CIRCULATIONAHA.107.761643
Fedorowski, A. (2019). Postural orthostatic tachycardia syndrome: Clinical presentation, aetiology and management. Journal of Internal Medicine, 285(4), 352–366. doi:10.1111/joim.12852
Stewart, J. M. (2013). Common syndromes of orthostatic intolerance. Pediatrics, 131(5), 968–980. doi:10.1542/peds.2012-2610
Benarroch, E. E. (2012). Postural tachycardia syndrome: A heterogeneous and multifactorial disorder. Mayo Clinic Proceedings, 87(12), 1214–1225. doi:10.1016/j.mayocp.2012.08.013
Stewart, J. M., Taneja, I., & Medow, M. S. (2007). Reduced central blood volume and cardiac output and increased vascular resistance during static handgrip exercise in postural tachycardia syndrome. American Journal of Physiology: Heart and Circulatory Physiology, 293(3), H1908–H1917. doi:10.1152/ajpheart.00439.2007
Dysautonomia International. (n.d.). Postural Orthostatic Tachycardia Syndrome. Dysautonomia International.
Standing Up to POTS. (n.d.). What is POTS? Standing Up to POTS.

12 reasons autism in women is easily missed ❤️‍🩹

1) Gets distressed by transitions or sudden plan changes: Labeled as “overreacting” or “inflexible”.

2) Autism research and clinical expectations were shaped by male-typical presentations: Labeled as “doesn’t fit autism”.

3) Has sensory sensitivities (noise, light, textures, food): Labeled as “picky” or “too sensitive”.

4) Studies people to learn rules: Labeled as “mature for her age”.

5) Goes silent when overwhelmed: Labeled as “shy”.

6) Burns out after social effort or constant masking: Labeled as “depression” or “anxiety”.

7) Stims in subtle ways (ex. fidgeting or hair twirling): Labeled as “nervous habits” or “ADHD”.

8) Friendship patterns are intense or all-or-nothing: Labeled as “clingy” or “too intense”.

9) Laughs at the right time but feels lost: Labeled as “fine socially”.

10) “Loses speech” under stress: Labeled as “refusing to talk”.

11) Can’t name feelings, only physical sensations: Labeled as “emotionally unavailable”.

12) Misreads flirting or social subtext: Labeled as “naive”.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your doctor.

#AutismInWomen #AutismAwareness #Autism #Hyperresilient #KeepTheFaith

Clinical Features and Comorbidities Associated With hypermobile Ehlers-Danlos Syndrome (hEDS) ❤️‍🩹
This list is not diagnostic nor is it all-inclusive.

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your clinician.

Sources will be in the comments.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

#hEDS #POTS #MCAS #ADHD #Autism #KeepTheFaith #Hyperresilient

Pelvic pain is often reported in people with hypermobile Ehlers-Danlos syndrome (hEDS), and it can have more than one driver ❤️‍🩹
Endometriosis is a chronic inflammatory condition where tissue similar to the lining of the uterus grows outside the uterus and can respond to hormone changes ❤️‍🩹
Because symptoms can overlap, a stepwise evaluation can help clarify whether symptoms are primarily a endometriosis-driven, primarily connective-tissue and pelvic floor driven, or a combination ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

#Endometriosis #hEDS #HSD #ChronicIllnessAwareness #InvisibleIllness #PelvicPain #Hyperresilient #KeepTheFaith

Symptoms that seem totally unrelated, like joint pain, sensory overload, or sudden fatigue, often appear in conditions such as hEDS, HSD, POTS, MCAS, Autism, and ADHD. Many of us brush them off as isolated quirks until the bigger picture clicks into place ❤️‍🩹
Swipe through to see how these might connect in your life. How long did it take for your symptoms to start making sense as a whole? Share in the comments ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

#hEDS #HSD #POTS #MCAS #ADHD #Autism #Hyperresilient #InvisibleIllness #ChronicIllnessAwareness #KeepTheFaith

When ADHD looks “scattered,” the brain is often working overtime in ways no one else can see. ADHD can be a great strength when it has the structure, tools, and support ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

#ADHD #AuDHD #Hyperresilient #KeepTheFaith

One of the most important gifts we can give another person is the gift of understanding ❤️‍🩹 I do not have all the answers, and understanding has not fixed every hard thing in my life, but it has changed how I care for my own health and how I support my family in what they are facing. Having language and clarity has eased some of the fear, confusion, and isolation around all of it.
Hyperresilient exists in part because I want to share the kind of knowledge I spent years searching for when nothing felt clear, so other people do not have to feel as lost as I did. My hope is that what I share here helps people feel more informed, less overwhelmed, and a little less alone ❤️‍🩹
We are in this together, and we are all Hyperresilient ❤️‍🩹

#hEDS #HSD #POTS #MCAS #InvisibleIllness #ADHD #AuDHD #Autism #KeeptheFaith #Hyperresilient

Histamine can show up almost anywhere in the body, which is why the symptoms can look so scattered and confusing ❤️‍🩹

It is a messenger that your body is reacting to something: food, hormones, temperature changes, stress, infections, environmental triggers, or a mix of all of the above. When histamine is released in different tissues, it can look like separate diagnoses in each system instead of one pattern.

If you notice clusters of these symptoms in your skin, gut, bladder, heart rate, muscles and joints, sleep, mood, or brain, it may be worth talking with a clinician about mast cells, histamine, and potential triggers. Tracking what you feel, when it happens, and what was going on around you can be a helpful starting point for that conversation ❤️‍🩹

If this was helpful, save it to revisit later and share it with someone who is trying to understand their symptoms.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

Sources will be listed in the comments.

#Hyperresilient #MCAS #histamine #InvisibleIllness

When ADHD and AuDHD show up in everyday life, here are some of the everyday signs people may not realize are part of neurodevelopmental wiring ❤️‍🩹:

Overthinking everything to stay ahead of mistakes Thinking about replying for weeks, then forgetting completely Starting conversations in the middle because the beginning happened internally Explaining things thoroughly to avoid being misunderstood Interrupting often or trying very hard not to Verbal instructions disappearing unless written down Noise stacking leading to overwhelm Strong waves of productivity followed by a sudden crash Wanting to relax but defaulting to tasks every time Delaying sleep even when completely exhausted Creating lists for clarity, then getting overwhelmed by them Decluttering, researching, planning, or starting new ideas instead of resting Thriving with complex tasks while feeling overwhelmed by basic ones Repeating the same mistake again and again High functioning looking effortless because masking became second nature Growing up labeled with anxiety, perfectionism, and “a pleasure to have in class”

Follow @Hyperresilient for clear, research based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical care. Always consult with a qualified medical professional.

#ADHD #AuDHD #KeepTheFaith #Hyperresilient

2025 EDS sleep study: 4 numbers that help explain your exhaustion ❤️‍🩹
This survey included 2,365 adults with Ehlers-Danlos syndromes, recruited through the Ehlers-Danlos Society website.
About 85% self-reported hypermobile EDS (hEDS).
65.3% slept fewer than 8 hours per night.
26.2% averaged fewer than 6 hours of sleep.
41.4% regularly used prescription sleep medication to fall asleep.
67.5% took more than 30 minutes to fall asleep.

This study highlights an association between EDS and:
- poorer sleep duration
- taking longer to fall asleep
- more frequent use of sleep aids, including prescription medication

Assessing sleep and sleep hygiene may be an important part of EDS management. More research is needed to fully understand these sleep patterns ❤️‍🩹

If this was helpful, save this post to revisit later and share it with someone who is trying to understand your exhaustion ❤️‍🩹

Source: Crews-Stowe C, Tudini F, Jung M K, Forman J, Riley B, Eton S, Levine D. (2025). Sleep characteristics in individuals with Ehlers-Danlos syndrome. Medical Sciences, 13(3), 85. DOI: 10.3390/medsci13030085

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your own medical team before making changes to your care.

#hEDS #EDS #HSD #InvisibleIllness #Hyperresilient

More Things Neurotypicals Misread About How We Communicate ❤️‍🩹
(Autism | ADHD | AuDHD)

Share this to help raise awareness and follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

#Autism #ADHD #AuDHD #Hyperresilient #KeepTheFaith

Navigating the holidays with hypermobile Ehlers-Danlos syndrome (hEDS), Hypermobility Spectrum Disorder (HSD), Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), or any other chronic condition means planning for energy levels, symptoms, and sensory overload just as much as you plan for food and gifts ❤️‍🩹

This guide is all about building the day around your body: protecting your energy windows, lowering sensory load, planning for food triggers, supporting your nervous system, using simple social scripts, and making recovery part of the actual plan.

Honoring your need for structure, pacing, and recovery is part of your holiday plan.

Save this to revisit before each holiday event, and share it with someone who will be with you this season so they can support your plan too ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with a qualified healthcare professional.

#hEDS #HSD #POTS #MCAS #ChronicIllnessAwareness #InvisibleIllness #Hyperresilient #KeepTheFaith

Living with a chronic illness means getting opposite advice from every direction. One person tells you to rest more, the next says you’re resting too much. Drink more water… no wait, drink less. Go outside more… actually stay inside.
Sometimes it feels endless, and it’s no wonder we often choose to not even explain the symptoms we’re dealing with ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare professional.

#hEDS #HSD #POTS #MCAS #InvisibleIllness #ChronicIllnessAwareness #KeepTheFaith #Hyperresilient

Sometimes this reminder really helps me ❤️‍🩹
You are HyperRESILIENT ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

#Hyperresilient #KeepTheFaith

A 2025 study found dramatically higher rates of issues like fatigue, brain fog, anxiety, depression, panic attacks, PTSD, and sleep problems occurred in the MCAS population compared to controls. Many participants reported living with multiple symptoms at the same time, often without clear answers for years ❤️‍🩹
The study also examined how often MCAS-targeted treatments improved these symptoms and documented the side effects patients experienced. The findings show that responses can vary widely, and that some side effects may be related to the medication itself while others may stem from inactive ingredients that trigger reactions.
MCAS is still underrecognized, especially when symptoms show up across multiple systems. The authors of this study urge clinicians to take MCAS into account when someone has several unexplained problems and to use mast cell mediator testing when the clinical picture fits. Better awareness means fewer missed diagnoses, fewer years without answers, and a clearer path toward treatment that actually helps.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Source:
Weinstock, L. B., Afrin, L. B., Reiersen, A. M., Brook, J., Blitshteyn, S., Ehrlich, G., Schofield, J. R., Kinsella, L., Kaufman, D., Dempsey, T., & Molderings, G. J. (2025). Prevalence and treatment response of neuropsychiatric disorders in mast cell activation syndrome. Brain, Behavior, & Immunity – Health, 48, Article 101048. https://doi.org/10.1016/j.bbih.2025.101048

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical guidance. Always consult with your healthcare provider.

#hEDS #POTS #MCAS #ChronicIllnessAwareness #InvisibleIllness #KeepTheFaith #Hyperresilient

Varicose veins can show up in people with hypermobile Ehlers-Danlos syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) because the connective tissue supporting the vein walls is softer and stretches more easily ❤️‍🩹
Thinner, more translucent skin can also make veins look more visible. These changes are clinically observed even though varicose veins are not included in the official 2017 diagnostic criteria for hypermobile Ehlers-Danlos syndrome.
When vein walls stretch or when one-way valves do not seal fully, blood can pool. Heat, standing, hormone shifts, and gravity-dependent positions (to name a few) can make symptoms more noticeable, especially for people who also have Postural Orthostatic Tachycardia Syndrome (POTS). People often describe heaviness, pressure, aching later in the day, itching or burning, and twisting or bulging segments along the vein. Hemorrhoids, vulvar varicosities, and more visible veins during flares, heat, or hormonal changes can also occur.
Symptoms may increase as the day goes on because of pooling. Heat, humidity, or travel can increase swelling or discomfort. Some people notice cosmetic changes even when symptoms are mild. Elevating the legs can help temporarily. Graduated compression, muscle strengthening, avoiding long periods of sitting or standing, and talking with a vascular specialist if swelling or skin changes increase are common supportive strategies ❤️‍🩹
If vein changes appear very early in childhood or are unusually severe, it can be important to discuss evaluation with a knowledgeable healthcare professional to help rule out vascular Ehlers-Danlos syndrome (vEDS).

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical guidance. Always consult with a qualified healthcare professional.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

#hEDS #HSD #POTS #InvisibleIllness #Hyperresilient #KeepTheFaith

We deal with a great deal of nausea around here, and I know many of you all do too ❤️‍🩹 I’ve made a couple of posts recently about it, but wanted to briefly explain why so many different triggers can lead to the same feeling ❤️‍🩹

There are two primary peripheral pathways that help explain this. Signals from the gastrointestinal system travel through the vagus nerve, carrying “threat detected” messages to the brainstem. Signals from the inner ear travel upward when there is motion mismatch or imbalance. Even though these pathways start in different places, they converge in the same brainstem hub ❤️‍🩹
That shared processing point is one reason nausea from things like eating, motion, dizziness, or autonomic changes can feel so similar and so unpredictable ❤️‍🩹

Nausea is part of a protective response, the body’s natural way of keeping you safe ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your medical provider.

#hEDS #HSD #Nausea #POTS #MCAS #InvisibleIllness #Hyperresilient #KeeptheFaith

If someone with an ongoing health challenge goes quiet, it’s probably not because they’re pulling away ❤️‍🩹 They might be flaring. They might be recovering. They might be completely drained, mentally, physically, emotionally.
Sometimes they’re overwhelmed, overstimulated, or protecting what little energy they have left. Sometimes they’re coping with a setback that’s too hard to explain. Sometimes they just can’t find the words.
This can happen when people are navigating things like hypermobile Ehlers-Danlos syndrome (hEDS), Hypermobility Spectrum Disorder (HSD), Postural Orthostatic Tachycardia Syndrome (POTS), Mast Cell Activation Syndrome (MCAS), Autism or ADHD (just to name a few).
Silence doesn’t mean they don’t care. Sometimes, it’s self-preservation. And your support still matters more than you know ❤️‍🩹
Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹
 #InvisibleIllness #KeepTheFaith #Hyperresilient

Masking changes how a day feels for many of us who live with chronic conditions such as hypermobile Ehlers-Danlos syndrome (hEDS), hypermobility spectrum disorder (HSD), postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), or neurodivergence such as autism and ADHD.

Looking fine often means the body is doing extra work to manage things like pain, sensory load, heart rate shifts, nausea, fatigue, or cognitive strain, all while appearing unfazed on the outside ❤️‍🩹

Masking helps many function, keep up, or reduce misunderstanding, and the impact is significant even when it is unseen ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

#hEDS #HSD #POTS #MCAS #Autism #ADHD #KeepTheFaith #Hyperresilient #HyperresilientLife #InvisibleIllness

Signs of Mast Cell Activation Syndrome (MCAS) can affect the skin, gut, cardiovascular system, respiratory system, and nervous system. People often notice changing reactions, shifting symptoms, or flares that seem to come and go throughout the day ❤️‍🩹  These patterns stem from mast cell mediators that can influence multiple body systems at once. Tracking what shows up for you can help support clearer conversations with your care team ❤️‍🩹
 Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹
 Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your medical provider.

Sources:
Valent, P., Akin, C., Bonadonna, P., Hartmann, K., Brockow, K., Niedoszytko, M., Nedoszytko, B., Siebenhaar, F., Sperr, W. R., Oude Elberink, J. N. G., Butterfield, J. H., Alvarez-Twose, I., Sotlar, K., Reiter, A., Kluin-Nelemans, H. C., Hermine, O., Gotlib, J., Broesby-Olsen, S., Orfao, A., Horny, H. P., … Metcalfe, D. D. (2019). Proposed Diagnostic Algorithm for Patients with Suspected Mast Cell Activation Syndrome. The journal of allergy and clinical immunology. In practice, 7(4), 1125–1133.e1.
Afrin, L. B. (2013). Presentation, diagnosis, and management of mast cell activation syndrome. In D. B. Murray (Ed.), Mast cells: Phenotypic features, biological functions and role in immunity (pp. 155-232). Nova Science Publishers.

Postural Orthostatic Tachycardia Syndrome (POTS) can affect many parts of the body ❤️‍🩹 It can influence vision, concentration, breathing, circulation, temperature regulation, digestion, balance, and overall tolerance to standing.

These symptoms can happen in POTS, but having them does not mean the condition is present. Many different conditions can create similar symptoms ❤️‍🩹

Some individuals notice blurry vision when standing, trouble focusing, dizziness, shortness of breath, chest pressure, internal shakiness, temperature swings, headaches that worsen when upright, or nausea after standing or eating. Others describe tingling in the hands or feet, flushing, cold extremities, difficulty taking a deep breath when upright, or becoming suddenly exhausted after simple errands ❤️‍🩹

If any of these experiences feel familiar, the next step is to speak with a qualified medical professional or healthcare provider who can review the history, consider other explanations, and decide whether any testing is needed. This post is educational and not a diagnostic tool.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with a healthcare provider.

Full sources listed in the comments ❤️‍🩹

#POTS #Dysautonomia #InvisibleIllness #Hyperresilient #KeepTheFaith

Breath-holding is a common stability strategy in people with Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) ❤️‍🩹 It creates fast internal pressure that stiffens the trunk and helps the body control joint movement during challenging tasks.

But over time, this pattern can increase muscle fatigue, reduce coordination, aggravate dysautonomia, and shift stability to larger compensatory muscles instead of the deep stabilizers your body relies on. This can make movement feel harder and reinforce the cycle of instability the body is already trying to manage.

Small changes like controlled breathing, slower tempo, and smaller ranges help strengthen the true stabilizers so breath-holding becomes less automatic over time.

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not a substitute for personalized medical advice. Always consult with your healthcare provider.

#hEDS #HSD #POTS #Dysautonomia #KeepTheFaith #Hyperresilient

Nausea is a common protective mechanism in the body, triggered by a complex network of pathways that detect and respond to potential threats. It involves signals from the gastrointestinal system (where irritants activate the vagus nerve), the vestibular system (handling motion imbalances), higher brain regions (adding emotional and cognitive context), and brainstem structures like the nucleus tractus solitarius for integration ❤️‍🩹

Understanding the systems involved and their complex interactions sheds some light on why nausea is so prevalent in conditions such as hypermobile Ehlers-Danlos syndrome (hEDS), hypermobility spectrum disorder (HSD), postural orthostatic tachycardia syndrome (POTS), and mast cell activation syndrome (MCAS) ❤️‍🩹

According to a 2025 study from the Norris Lab, 90.6 percent of individuals with hEDS and 77.8 percent with HSD report experiencing nausea, underscoring the importance of recognizing these connections for better management ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

#hEDS #HSD #Nausea #POTS #MCAS #InvisibleIllness #Hyperresilient #KeeptheFaith

Sources will be in the comments.

The full post for this topic was added earlier this afternoon. You can find it on my Hyperresilient main tab page ❤️‍🩹
Sitting “normally” is often hard with hEDS and HSD. When your joints move more than they should, neutral sitting rarely feels stable. Your body shifts automatically into positions that feel more supported.
Standard sitting allows too much joint motion, so your brain chooses shapes that reduce movement, even if they look unconventional.
Deep stabilizing muscles work harder in hypermobile bodies because there is less passive support. They fatigue sooner, and larger surface muscles step in to hold you upright. As those compensators tire, neutral sitting becomes uncomfortable, and your body shifts into positions that require less effort.
Folding, tucking, bending, or wrapping your legs adds compression. Compression gives clearer body awareness and more stability, which is one reason these positions feel better instantly.
Perching, sitting cross-legged, feet on the seat, sitting on your hands, knees pulled to your chest, leaning forward on your thighs, twisting sideways in the chair, lifting your heels, bracing with your hands, or leaning on one armrest can all create the stability your joints don’t provide on their own.
Staying still increases discomfort. Frequent shifting helps reduce joint strain, nerve irritation, muscle fatigue, and circulatory symptoms. For some people, autonomic symptoms also play a role. Certain sitting angles reduce dizziness, tachycardia, or blood pooling.
These patterns are adaptive ways your body creates stability, predictability, lower energy demand, and less discomfort ❤️‍🩹
Follow @Hyperresilient for clear, research based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

#hEDS #POTS #InvisibleIllness #KeepTheFaith #Hyperresilient

People with hypermobile Ehlers-Danlos syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) often sit in positions that look unusual from the outside. These patterns are not habits or quirks. They are the body’s way of creating stability when joints move more than they should and neutral positions feel unstable ❤️‍🩹

Sitting “normally” can allow too much joint motion, so the brain shifts into shapes that reduce movement and feel more secure. When deep stabilizing muscles work harder to support posture, they fatigue sooner. Larger surface muscles then step in, even though they are not designed for long-term stability, which makes upright sitting uncomfortable ❤️‍🩹

Positions that fold, tuck, bend, wrap, or compress the body provide clearer body awareness and a greater sense of stability. This is why many people naturally perch on chair edges, sit cross-legged, place their feet on the seat, lean forward, brace with their hands, twist sideways, or lift their heels into a calf-raise position when sitting ❤️‍🩹

These adjustments also help reduce joint strain, nerve irritation, muscle fatigue, and circulatory symptoms. For some, sitting angles are chosen to lessen dizziness, tachycardia, or blood pooling.

These patterns are adaptive ways the hypermobile body manages stability, predictability, energy, and comfort ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

#hEDS #HSD #POTS #InvisibleIllness #KeepTheFaith #Hyperresilient

STIFFNESS in hypermobile Ehlers-Danlos syndrome (hEDS) ❤️‍🩹
Hypermobility often means unstable joints.
But stiffness is also common in hEDS or HSD.
And it can increase over time.
Over time, things like guarding, fatigue, inflammation, and poor joint feedback can all make stiffness worse.
Support is possible through things like strengthening, massage, topical relief, pacing, hydration, and controlled movement ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

#hEDS #HSD #KeepTheFaith #Hyperresilient

Understanding dopamine hits can help explain why certain moments feel energizing, calming, or motivating for people with ADHD and Autism ❤️‍🩹 Dopamine plays a role in attention, motivation, prediction, and regulation, and different brains respond to different experiences to create those boosts.
In ADHD, dopamine hits often come from stimulation, including novelty, movement, music, quick changes, or anything that increases interest and focus. These moments can make it easier to start a task or stay engaged.
In Autism, dopamine hits often come from predictability, including repetition, deep interests, comforting routines, or soothing sensory input. These experiences can help the brain feel grounded, regulated, and ready to move through a task.
In AuDHD, both patterns can overlap. Dopamine may come from stimulation and predictability, which can lead to bursts of motivation, deep focus, fast shifts, or strong routines depending on the situation ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and Autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

Source: da Silva BS, Grevet EH, Silva LCF, Ramos JKN, Rovaris DL, Bau CHD. An overview on neurobiology and therapeutics of attention-deficit/hyperactivity disorder. Discov Ment Health. 2023 Jan 5, 3(1):2. doi: 10.1007/s44192-022-00030-1. PMID: 37861876, PMCID: PMC10501041.

#ADHD #Autism #AuDHD #InvisibleIllness #KeepTheFaith #Hyperresilient #HyperresilientLife

A low Beighton score doesn’t mean your hypermobility disappeared.
The Beighton score only measures a small number of movements. Flexibility can change with things like age, pain, injury, or protective muscle tension, but that doesn’t mean your hypermobility or lived experience are gone.
Even when flexibility fades, Hypermobile Ehlers-Danlos Syndrome (hEDS) and Hypermobility Spectrum Disorder (HSD) don’t disappear. Your history and symptoms still count.
Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹
Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.
Sources:
Malek, S., Reinhold, E.J. & Pearce, G.S. The Beighton Score as a measure of generalised joint hypermobility. Rheumatol Int 41, 1707–1716 (2021). https://doi.org/10.1007/s00296-021-04832-4
Castori M, Sperduti I, Celletti C, et al. Symptom and joint mobility progression in the joint hypermobility syndrome (Ehlers–Danlos syndrome, hypermobility type). Clin Exp Rheumatol. 2011;29(6):998–1005.
Singh H, McKay M, Baldwin J, et al. Beighton scores and cut-offs across the lifespan: cross-sectional study of an Australian population. Rheumatology. 2017;56(11):1857–1864.
Tinkle B, Castori M, Berglund B, et al. Hypermobile Ehlers–Danlos syndrome (a.k.a. Ehlers–Danlos syndrome Type III and Ehlers–Danlos syndrome hypermobility type): Clinical description and natural history. Am J Med Genet C Semin Med Genet. 2017;175(1):48–69.
#hEDS #HSD #ChronicIllnessAwareness #InvisibleIllness #KeepTheFaith #Hyperresilient

Signs You May Have Grown Up Masking Without Realizing It ❤️‍🩹 (Autism | ADHD | AuDHD)

Awareness can reduce confusion, identify triggers (so you can reduce overwhelm), improve relationships… to name just a few ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and Autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and not a substitute for personalized medical guidance. Always consult with your healthcare provider.

#Autism #ADHD #AuDHD #Masking #Hyperresilient #KeepTheFaith

Disappointment can either drain you or deepen your purpose. Choose depth ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

#Hyperresilient #KeepTheFaith

Maybe you were told you have autism. Or ADHD. Or hEDS. Or POTS. Or MCAS. Or more ❤️‍🩹
Each name brings understanding and new questions too.
Sometimes it connects the dots that finally make sense to you.
This can be both validating and overwhelming.
Much of the world still struggles to understand what it cannot see.
New language can bring clarity to experiences that never had words.
Trust can rebuild in your body, in care, in yourself.
Healing may look uncertain, yet it can hold moments of understanding and great relief.
Under every label, every name, every flare, you are Hyperresilient ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, POTS, MCAS, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical guidance. Always consult with your healthcare provider.

#Autism #ADHD #hEDS #POTS #MCAS #InvisibleIllness #KeepTheFaith #Hyperresilient #HyperresilientLife

Attention-deficit/hyperactivity disorder (ADHD) is often missed in girls and women ❤️‍🩹
From diagnostic criteria built around male samples to cultural expectations that reward quietness and perfectionism, many signs of ADHD in females remain unseen.
Masking, emotional regulation differences, comorbid conditions, and hormonal influences all contribute to delayed or missed diagnosis. Early identification can prevent years of confusion, shame, and burnout, and lead to care that actually fits how ADHD shows up across a lifetime ❤️‍🩹

Follow @Hyperresilient for clear, research-based posts on hEDS, HSD, ADHD, and autism ❤️‍🩹

Medical Advice Disclaimer: This information is educational and is not intended to be a substitute for personalized medical advice. Always consult with your healthcare provider.

Sources:
Attoe, D. E., & Climie, E. A. (2023). Miss. Diagnosis: A Systematic Review of ADHD in Adult Women. Journal of Attention Disorders, 27(7), 645–657. https://doi.org/10.1177/10870547231161533
Young, S., Adamo, N., Ásgeirsdóttir, B. B., Branney, P., Beckett, M., Colley, W., Cubbin, S., Deeley, Q., Farrag, E., Gudjonsson, G., Hill, P., Hollingdale, J., Kilic, O., Lloyd, T., Mason, P., Paliokosta, E., Perecherla, S., Sedgwick, J., Skirrow, C., Tierney, K., van Rensburg, K., & Woodhouse, E. (2020). Females with ADHD: An expert consensus statement taking a lifespan approach providing guidance for the identification and treatment of attention-deficit/hyperactivity disorder in girls and women. BMC Psychiatry, 20(1), 404. https://doi.org/10.1186/s12888-020-02707-9

#ADHD #ADHDinWomen #ADHDinGirls #WomenWithADHD #ADHDAwareness #ADHDEducation #InvisibleIllness #Hyperresilient #HyperresilientLife

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